The 5th August 2002, a day we thought we would never see, Lewis celebrating his first birthday with his family at home,we had a brilliant day, as we did for Christmas that year. From that time until August 2003 apart from the odd setback Lewis remained in reasonable good health, we even took him with his brothers and sister to Euro-Disney we had a fantastic time, with loads of brilliant photographs and memories.
Things started to go downhill December 2003, Lewis caught a simple cold, whereas with us a cold is stated 'simple', to him with his condition it is extremely serious. He was re-admitted to Shrewsbury Hospital and it was there during a routine blood test Lewis collapsed in our arms, and stopped breathing. Again back to Birmingham Intensive care, and he was place onto the Super urgent heart transplant list at Great Ormond Street Hospital.
He again amazed doctors and was after only four days of being ventilated back on a ward sitting up, smiling and eating, but obviously extremely sick. We were told his heart was on a knife edge, he could collapse again at any time and he had to remain in hospital until a heart became available. We were there for six weeks, praying for the call to come but nothing. Sadly Lewis collapsed again and was back on the Intensive care, we knew we were running out of time, he was on I.T.U for nearly three weeks, ventilated and on more adrenaline than a child of his age has ever been on. In the last week he arrested six times, three times in one day!
Still no phone call, and the day we had been dreading arrived, we were taken into a side room and told by doctors they could do no more for our son, even if a heart became available Lewis was far too unstable to be moved to Great Ormond Street Hospital. Our prayers had not been answered, our son had put up such a brave strong fight, we are so proud to of been his mum and dad, but still on Tuesday April 6th 2004 our beautiful son died in our arms, he was just two and half years old.

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